Forum Rules (10/2009)

Conduct online and at meetings.
The purpose of this policy is to maintain a safe and respectful environment for
all people involved in this patient support group. It is designed to give general
guidelines for optimum standards of behaviour which provide members with safety,
privacy and total confidentiality.
All members of the organisation, volunteers and the committee.
On line, on the forum and at meetings:
  1. Everyone has the right to express an opinion; however no one should force their own personal opinion on others.
  2. Everything discussed at committee meetings, informal meetings and posts on the forum must be kept strictly confidential and not disclosed or broadcast outside of the group (unless required to do so by law). Information received from members may only be shared with others with respect and discretion.
  3. The group is based upon mutual trust which should not be abused.
  4. Content of posts to the website should not include any offensive or abusive language directed at an individual.
  5. Members must not give medical advice, however it is acceptable to give suggestions and to share experience of own treatment path or sources of medical research.
  6. UKLP is an equal opportunity organisation, who welcomes and includes all individuals. Discrimination will not be tolerated.
  7. Any behaviour that brings UKLP into disrepute will may result in termination of membership.
  8. Participants must not be pressurised to contribute beyond their individual safety boundaries and can freely “pass” in sharing information about themselves. However, in the interests of creating a sharing and caring community, all members of the forum are required to contribute to the topics. Failure to post will result in termination of forum membership – lurkers are not tolerated
General conditions

UKLP has zero tolerance of discrimination, bullying, harassment and violence.
Personal information

Any personal information held by UKLP such as names addresses and contact
numbers will not be disclosed to anyone either within the group or to an external
organisation without the prior written permission of the member. Members are
entitled to request to see information held on them at any time, Requests to be
made in writing and directed to;

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